I post all the great stuff my kid does–just like most moms. I rarely talk about his genetic issues or his Aspergers.
The reason I don’t talk about them is because I don’t want anyone to think I’m exploiting my kid; or embarrassing him. But, he’s my kid. He’s faced a lot of bullshit and you know what? He’s doing better than the majority of adults in the country.
My son gets bullied. Or he used to. He doesn’t much any more. He’s a gentle giant. My baby weighs 215 pounds and stands around 5 foot 6. He’s always been tough–solid. Ever since he was in my belly. Dear lord, that pregnancy was hard–sometimes I think that’s why it was the only one.
My kid–my amazing kid, has pseudohypoparathyroidism– Google.
But no one ever heard of pseudohypoparathyroidism or what he was first diagnosed with–congenital hypothyroidism. Again, Google–remember the congenital part. But it’s so rare (7 out of a million), and the developmental problems are so very close to Aspergers (and newsflash, you can’t get your kid proper help or education if he’s different in this country without a diagnosis people have heard of). So, my son has Aspergers.
So, how did I get to be me today? I’d love to claim I’m just really smart. I’d love to claim that it’s all me, but it isn’t. I got to be me today by being my kid’s mom. He’s not like you and me. He’s not cynical. He’s not judgmental. He takes everything to heart. He takes everything literally. So, I’ve spent these last 14 years teaching my son to navigate the world. Things I’d never had to think about, I thought about. The questions he asks (he once referred to himself as the “million question guy”), have forced me to look at everything differently. I think I probably always did, but I hated myself for seeing things differently.
My son is amazing–far more than I will ever be. He’s smart, he’s talented, he’s loving. He doesn’t judge anyone until they’re mean to him.
I’m not writing this to exploit or embarrass my son. I’m writing it to let certain closed-minded people know that different is good. Different is necessary. People like my son will change the world if you allow them in. He’s a great kid. I’m very proud of him.